Autism and School Swimming

048When school swimming started last week at our small catholic rural primary, my excited boy and I turned up at the pool first thing in the morning. Covered in sunscreen, both wearing swimmers, we nervously awaited our group allocation.

The swimming coordinator/teacher has known all my children from birth as she had a baby due on the same day as my eldest girl. We have been to birthday parties at her house, delivered gifts when she had personal tragedies, sewn quilts for her next child, compared music teachers and drunk champagne together. Mostly we have seen each other at the pool. Where we go every day. Seriously. Rain, hail or shine we go to our local pool every day. We have practically adopted the pool manager and his family.

This teacher knows our children can swim like fish. She knows my boy with autism is especially keen on water and the pool. She has seen him swimming laps, she has helped him remember which stroke he was doing at the beginning of each race at last year’s carnival and she has put him in a swimming group last year where the kids had to swim 8 laps of different strokes in their allocated half hour session. He did it!

But this year the kids were assigned to group after group until only the last few kids were left including my son. She asked if I would help in this group and I said yes. When we got to the side of the pool it became obvious that the kids were not confident in the water. Some were uneasy getting in the shallow end while others wouldn’t put their heads under water. My boy was keenly holding on to the side and bouncing with excitement waiting for the action to start. He had been put into the NON-swimmers group!

I noticed when a couple of the boys were sent up a group to a harder level and thought my boy would be soon sent on. It didn’t happen. We were in the pool floating on our backs, swimming with a kick board and kicking off from the side for the whole lesson.

When I went home I thought about the lesson. I wondered why my competent and confident swimming boy would be put into a group that does not suit his needs. I read the note we had about swimming that said the children would be “practicing for the swimming carnival or learning to swim”. His swimming group allocation made no sense to me.

In the afternoon I went to see the swimming teacher and ask her if my son was in the group that was right for him as he could swim. I told her I was fine with him being in that group if there was a reason as he only needed reminding what each stroke was called and he could swim many laps.

Amongst other teacher talk (I am a trained teacher so I can say that! Ha!) she asserted that my boy would slow the others down (he is faster than me) and may “dolphin dive” while swimming a lap (so what?). Despite telling us all at the pool that these groups were fluid and may not be the best fit for our child and parents were welcome to discuss their child’s group after swimming.

After school I missed several calls where the swimming teacher left a message saying she had”come up with a solution”.  I rang the school back. The swimming teacher had left for the day but the Principal said she was able to report on what they had decided after our discussion. The “solution” to the problem of me mentioning that although my boy can swim like a fish and was placed in a non-swimming group was a corker!

The staff had decided that if I wanted my boy to go to another swimming level then I had to get into the pool with him and do all the activities with him and swim laps with him so he didn’t miss out on any of the instructions! I was speechless. This very much sounded like blackmail to me. I asked a question so they decided to offer me what my child was due with the proviso that I do it all as well! Would they do that to a parent of a typical child? (How ridiculous to even ask!!!!)

My boy has autism. He is unable to complete the NAPLAN tests. He is beginner reader. Sometimes I arrive to volunteer in the school and he is sitting all alone eating his lunch. But he is kind. Good natured. Never wants to be in trouble.  Loves being read to. Loves drawing. Loves the playground. And love love loves swimming!

Swimming is his thing. He can do it. He goes all year feeling or appearing to his classmates as a struggler, an outsider, different, less than, disabled. Suddenly we get to swimming season and he is capable, buoyant and truly ABLE!

Why does the school want to belittle his achievements in learning to swim and our achievements in taking him to the pool so often that he just had to swim from an early age?

I volunteer at the school every afternoon when he doesn’t have an aide to make the teachers lives easier. I volunteered to help at swimming and was the only parent in my swimmers in the pool.

Why would asking a question about my child’s swimming group culminate in me being told I have to swim every lap with him? Twelve months ago he was swimming 8 laps a session with me walking beside him calling out if the stroke had changed. Why would he have regressed in a year?

Is it because, even when they are wrong or mistaken or unskilled in an area, schools always have to win?

 

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The Glorification of Busy

Read this wonderful post by Julia then stop what you are doing and hug somebody you love. Seriously…

fivefairiesandafella

I’ve been thinking a bit lately about the guts of 2013….my last bog standard year before getting diagnosed with cancer in the December.

It went a bit like this.  I’d studied a certificate 3 in Community Services Work the year before.  Two days a week, and I loved it.  After years of devoting myself to being a stay at home mum to four children, I had three at school and one at kinder and it gave me so much balance, between being a mother and being, well…me.

So, the following year, in 2013, I decided to throw myself full time into the diploma.  For the better part of the first half of the year, I rose at dawn, got four children off to school and kinder, went to classes all day, or to the library to study, did a round of pick ups at 3.30pm, got some groceries on the…

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Judith Collins Writes: Disability is a part of life

Unique Ability

Source: Sunday Star Times

Disabled-kids-toysAny parent will tell anyone who will listen that their child is special – often gifted, sometimes challenged but definitely special.

So what happens in the education system when our kids really are special, gifted or challenged, kids with disabilities or special abilities? Sadly, the answer is very dependent on the school zone and more importantly, on the school’s principal and the Board of Trustees.

There is no particular standard reaction from school principals to kids with disabilities or some other form of special needs. One family was told by a high decile state school principal that their child would only be enrolled if the parents funded a full-time teacher aide. Yet, a principal of another high decile state school refused to allow a parent to fund a teacher aide to assist her disabled child. When I questioned the principal about this, he said that allowing a…

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Casual Cruelty

I have returned from the drop off at school again today in tears. My boy, a beautiful, curious and sweet boy of nine years of age, has again bravely entered a world that is confusing, lonely and quite incomprehensible at times.

He has autism. This is school and, indeed life, for him.

All the way to school he asked to come home with me. I had forgotten his afternoon tea bag but said I would come back with it. That was a bad start. Anything out of the ordinary can make him feel unsettled and  unhappy. Lucky for me today, he was feeling pretty upbeat and the begging to return home stopped when we pulled up at the gate.

Our neighbours pulled up behind us. She is my friend and the boys are in the same class. We tried to wait for them but they seemed to be going very slow and I realised the boy didn’t want to walk in to school with my boy.

So, like always, I put my head down and kept going.

We put my boy’s bag where he has been told to put it so that he has a regular comforting spot. That place was taken and even after I moved some bags along, my neighbours boy pushed our bag into a hard to get to place, squashed up, inaccessible.

If I wasn’t there I’m pretty sure my boy’s bag would be on the ground. Pushed off. Left there.

And yesterday, one of the boys made my child wait an eternity while he got what he wanted out of his bag before he let my boy put his bag in his designated spot. I was watching.

We rushed to assembly after the bell and I told my son where to line up in age lines. He was heading there when the neighbours boy ran in and took the first place in the line. My little boy gets confused in all that morning rumpus so I told him to stay behind “Jack”.

Next thing you know, Jack has seen people he would rather be with and taken off to a group of boys at the end of the line leaving my kid confused and not sure if he is doing the right thing.

Nobody said hello to my beautiful boy. Nobody ran at him to greet him. He had just been at home drawing amazing pictures of garbage trucks filled with “trash” and a moose with a beard and telling us poems he had heard. But when he enters this place he is not valuable. He is not a person with wit and caring and a sparkle in his eye. He is the special boy. He is alone.

Back to school Mayhem!

We have had a long and varied summer! We have rested, eaten too much, stayed up way too late, watched countless movies, gone to the pool in our small town a lot, seen friends, flown in a plane, had sleepovers, remodelled the bathroom etc. Busy. Lovely. Over.

School’s back in.

My big girl has been brave all summer about her best friend leaving for an expensive city private school which leaves her facing high school “alone”. She has two other friends but they don’t get her. She broke down the day before school returned and sobbed and hugged me and didn’t think she wanted to go on. I talked for hours about how the things that scare us the most are often the thing worth doing eg. Going to university, going overseas, having a baby. She came good, organised herself completely, marched off to high school and….had  an “awesome” day!! Two days in and she hasn’t stopped talking about her great teachers, subjects and assignments! She is sooooo happy!

Yay!

Little girl (11 years) was quiet and unconcerned about going into her last year of Primary. No mention of any worries. We had a couple of get togethers with her best friend and thought that would smooth the return to school.

Wrong! They were put in separate classes so have to try to make friends with other people to survive in class. My girl has been rejected soundly by various social groups she has been in before, most of whom have had sleepovers at our house in the last year and she is feeling so alone! She keeps it bottled up and only cracks when she gets into trouble for being non cooperative around the home. She has cried two afternoons with her head in my lap so far. Not good.

Last, but certainly not least, is my lovely autistic boy who just turned nine. We went to a lot of trouble to have a big pool party for him last week so he could see all his school mates before returning to school. We talked about school, teachers, friends and watched a social story prepared by his dad anda wonderful teacher about going back to school.

He started asking with alarm last week if it was nearly a school day so we drew him a calendar to count down. When he knew it was school today he honestly couldn’t sleep last night. He lay in the dark for so long I thought he was asleep and then I heard this little voice pipe up with, “I’m sad about school, you know.”

I took a reluctant boy to school this morning and stayed helping in the library at school until I saw him again at break time. He seemed worried so I came back to cuddle him at afternoon break as I have done in the past and he seemed better. I drove off in tears, however, as I watched him wandering around with his bag of toys and snacks while everyone else were sitting with friends.

This afternoon I returned to find a very content little boy. He came home cheerfully, made his own afternoon tea of a cookie and milk and got me some too! Then sat down and did two pages of homework!

What a day! What a week! Already our schedule is overflowing with party invites, swimming carnivals, maths camps, peer support sleepovers etc! I am already EXHAUSTED!

Bring on the next holiday! I need a rest….

Moose Tracks Ice Cream

bake me away!

Moose Tracks Ice Cream

It’s been a dream of my dad’s to renovate* an old Airstream and drive across the US to see the national parks.  (*This would be one sweet ride…he is a master craftsman!)  Since this hasn’t happened yet, my parents flew up to Wyoming a few years ago to explore Yellowstone for a couple weeks.

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I like to tease my dad about that hat.  (photo by my mom, I’m assuming!)

While there, he found a beer that he really liked: Moose Drool Brown Ale by Big Sky Brewing Co. in Montana.  My sister and I were a bit shocked I think because he’s always been a Miller Light (eww) drinker.  I’m pretty sure he tried the Drool purely because of its name…

PB cups!

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Dear Elizabeth Farrelly: We NEED private education!

Last Friday in the Sydney Morning Herald my family and I were horrified to see yet another private school bashing article by the columnist, Elizabeth Farrelly. We would like to set the record straight in a number of areas she addressed.

In her article, titled “Why Private schools add little to education mix”, Farrelly starts by writing 7 paragraphs that do not even mention private schooling at all! Instead she compares (incomprehensibly) “the difference between education and damage”, refers obliquely to a possibility of “allowing more local students in Sydney Boys and Girls high schools”(these are well known public, selective schools) and calls for such selective schools to be seen as “Special Needs” as the children who are carefully selected and attend would otherwise “wither and die” in a normal school setting.

Farrelly then goes on to “declare an interest” (a huge one) as both her children attended Sydney Girls High and she admits “to having nightmares as to what we would do if they could not.”

She then calls for the resolution of making all schools public! This instead of letting local students who are not “orchid children” into the hallowed halls of Sydney Boys and Girls!

She would like to “Abolish private schools. Gone.”

Private schools “add little.” instead they “build enclaves of privilege for those who need it least.”

This we must protest against long and hard and with every fibre of our beings!

We are a family that moved back to my idyllic small town when my children were small from inner city Sydney. We are university graduates from families of university graduates with teachers, barristers, doctors, engineers, pathologists etc in our extended families.

I am a public school teacher. My mother has been a public school teacher since 1967. We believed (note past tense) in the public school system. We believed it would be universally accountable wherever we chose to bring up our beautiful, bright and diverse bunch of kids. We believed we would be listened to and valued as loyal public school people for decades. Or indeed just as decent taxpaying people. Or just as people.

When my beautiful mixed race daughter was bullied and excluded for achieving too highly in everything from sport to academics we protested to the teacher, deputy and Principal. We could see she had been coping until she got a teacher with questionable skills who allowed behaviour such as shouting, kicking balls indoors, leaving the classroom without warning and wandering around the room interfering. This teacher had been employed by the Principal  and he would not investigate the allegations from many parents of misconduct in that room and instead chose to cover the problems with bullying and lies.

We had no choice after our child was called a “stupid Chinese person” but to withdraw her on stress leave and investigate our options.

The only other school in our town is a small Catholic school (private) with very few children her age and she was dying for a group of friends and some acceptance. We reluctantly applied to a Grammar school in a nearby town and she was accepted immediately.

She has never looked back.

This school has shown great respect to her enthusiasm and abilities from her first day. One year after moving she was voted as a prefect at a school 6 times bigger than her previous school where terrible teaching, lack of kindness, empathy and fairness has been allowed to flourish under a Principal who is ruthless in his vindictiveness.

We have found a school better than I have ever taught in and better than we ever imagined and it is only a bus ride away.

We had no other choice of public schools. Our public school is holding a cruel monopoly over the kids in our town who attend as it has been allowed to develop a terrible culture of bullying and spin from the Principal which he is using to cover lack of teaching, lack of care and a history of laziness and ineptness which will culminate in some or lots of these kids having a lesser life than they deserve!

Our local public school kids are in a school with a toxic culture which spends far more time covering teacher mistakes and bad policy decisions than it does in teaching them how to read and write. The teachers still get their ample wages having gained one of the highest paid jobs in our small town but they are not providing these isolated kids the same chance “of performing to his or her full capacity as a human”.

City based proponents of the Public School debate are forgetting or willfully disregarding the story in the country.

We do not have another public school in the next suburb to go to. We have tiny public schools 1/2 hour – 45 mins away with no public transport and who are heavily influenced by our Principal as our local school is the largest in the area.

Elizabeth Farrelly, we tried!

We “flooded our middle class energy into the public system” and after years of teaching and volunteering for hours a week, donating time, money and our lovely kids into the public system, it has failed us and spat us out like rubbish.

Our closest selective schools are few and far away (3 hours) and the only public boarding school in this half of the state is single sex for boys!

Please don’t belittle the safe haven and hard work that private schools like the one we have found as adding “no value to what children bring home from school”. 

If I could capture the joy, acceptance, academic challenges and fairness that exudes from our daughters’ private school and bottle it, it would be worth a fortune. My girls wake up excited about school every morning and are more than willing to go that extra mile in anything they are asked because they believe in their school.

We are so lucky.

We have left behind the black hole of the public school in our town but the pain of betrayal lingers on.